BILL ANALYSIS                                                                                                                                                                                                    �




                                                                  AB 2041
                                                                  Page A
          Date of Hearing:   April 8, 2014

                        ASSEMBLY COMMITTEE ON HUMAN SERVICES
                                  Mark Stone, Chair
                    AB 2041 (Jones) - As Amended:  March 28, 2014
           
          SUBJECT  :  Developmental services: regional centers: behavioral  
          health treatment.

           SUMMARY  :  Provides a statutory definition for Behavior  
          Management Assistants and Behavior Management Consultants for  
          purposes of providing behavioral health treatment, being  
          vendorized by regional centers, and receiving health insurance  
          coverage for providing such services.

          Specifically,  this bill  :  

          1)Defines Behavior Management Assistant and Behavior Management  
            Consultant in statute for purposes of regional center  
            vendorization consistent with the definitions currently  
            provided for in Section 54342 of Title 17 of the California  
            Code of Regulations with the addition of individuals who meet  
            the required amount of education and experience in behavioral  
            health treatment other than applied behavior analysis (ABA).

          2)Deletes references to the current definitions for Behavior  
            Management Assistant and Behavior Management Consultant in  
            Title 17 CCR �54342 and instead references the newly proposed  
            definitions for both professionals for purposes of payment for  
            behavioral health treatment by health care service plan  
            contracts and health insurance policies, as specified.

           EXISTING LAW

           1)Establishes an entitlement to services for individuals with  
            developmental disabilities under the Lanterman Developmental  
            Disabilities Services Act (Lanterman Act).  (WIC 4500 et seq.)

          2)Grants all individuals with developmental disabilities, among  
            all other rights and responsibilities established for any  
            individual by the United States Constitution and laws and the  
            California Constitution and laws, the right to treatment and  
            habilitation services and supports in the least restrictive  
            environment.  (WIC 4502)









                                                                  AB 2041
                                                                  Page B
          3)Establishes a system of 21 nonprofit regional centers  
            throughout the state to identify needs and coordinate services  
            for eligible individuals with developmental disabilities and  
            requires the Department of Developmental Services (DDS) to  
            contract with regional centers to provide case management  
            services and arrange for or purchase services that meet the  
            needs of individuals with developmental disabilities, as  
            defined.  (WIC 4620 et seq.)

          4)Requires the development of an IPP for each regional center  
            consumer, which specifies services to be provided to the  
            consumer, based on his or her individualized needs  
            determination and preferences, and defines that planning  
            process as the vehicle to ensure that services and supports  
            are customized to meet the needs of consumers who are served  
            by regional centers.  (WIC 4512)
          5)Creates a process by which regional centers may "vendorize"  
            service providers, thereby providing a path to contract for  
            services with that provider and ensuring maximum flexibility  
            and availability of appropriate services and support for  
            persons with developmental disabilities.  (WIC 4648) 

          6)Authorizes regional centers to solicit an individual or agency  
            through a request for proposals or other means to provide  
            needed services or supports not presently available, provided  
            it is necessary to expand the availability of needed services  
            of good quality.  (WIC 4648(e)(1))

          1)Defines behavioral health treatment, for purposes of payment  
            under a health care service plan contract or a health  
            insurance policy, as professional services and treatment  
            programs, including applied behavior analysis and  
            evidence-based behavior intervention programs, which develop  
            or restore, to the maximum extent practicable, the functioning  
            of an individual with pervasive developmental disorder or  
            autism, and sets forth criteria that must be met related to  
            the treatment plan, prescription of the treatment, and the  
            providers authorized to provide such treatment, which includes  
            qualified autism service professionals, as specified. (H&S  
            1374.73(c)(1), INS 10144.51(c)(1))

          7)Includes in the definition of a "qualified autism service  
            professional" a behavioral service provider approved as a  
            vendor by a California regional center to provide services as  
            an Associate Behavior Analyst, Behavior Analyst, Behavior  








                                                                  AB 2041
                                                                  Page C
            Management Assistant, Behavior Management Consultant, or  
            Behavior Management Program as defined in Title 17 CCR �54342.  
            (H&S 1374.73 (c)(4)(D), INS 10144.51(c)(4)(D))

          8)Defines in state regulations, for purposes of regional center  
            vendorization, Behavior Management Assistant and Behavior  
            Management Consultant and requires education or experience in  
            ABA for both professionals, as specified. (17 CCR �54342)

           FISCAL EFFECT  :  Unknown.

           COMMENTS  :  This bill seeks to make training and education  
          requirements for Behavior Management Assistants and Behavior  
          Management Consultants who provide behavioral health treatment  
          to individuals with pervasive developmental disorders and autism  
          spectrum disorders consistent with the definition of behavioral  
          health treatment services that are required to be covered under  
          health care service plan contracts and health insurance  
          policies.

           Background  :  The Lanterman Act guides the provision of services  
          and supports for Californians with developmental disabilities.   
          Each individual under the Act, typically referred to as a  
          "consumer," is legally entitled to treatment and habilitation  
          services and supports in the least restrictive environment.   
          Lanterman Act services are designed to enable all consumers to  
          live more independent and productive lives in the community. 

          The term "developmental disability" means a disability that  
          originates before an individual attains 18 years of age, is  
          expected to continue indefinitely, and constitutes a substantial  
          disability for that individual.  It includes intellectual  
          disabilities, cerebral palsy, epilepsy, and pervasive  
          developmental disorder/autism spectrum disorder (PDD/ASD).   
          Other developmental disabilities are those disabling conditions  
          similar to an intellectual disability that require treatment  
          (i.e., care and management) similar to that required by  
          individuals with an intellectual disability.  This does not  
          include conditions that are solely psychiatric or physical in  
          nature, and the conditions must occur before age 18, result in a  
          substantial disability, be likely to continue indefinitely, and  
          involve brain damage or dysfunction.  Examples of conditions  
          might include intracranial neoplasms, degenerative brain disease  
          or brain damage associated with accidents. 









                                                                  AB 2041
                                                                  Page D
          Direct responsibility for implementation of the Lanterman Act  
          service system is shared by the Department of Developmental  
          Services (DDS) and 21 regional centers, which are private  
          nonprofit entities, established pursuant to the Lanterman Act,  
          that contract with DDS to carry out many of the state's  
          responsibilities under the Act.  The principal roles of regional  
          centers include intake and assessment, individualized program  
          plan development, case management, and securing services through  
          generic agencies or purchasing services provided by vendors.   
          Regional centers also share primary responsibility with local  
          education agencies for provision of early intervention services  
          under the California Early Intervention Services Act.  

           Regional centers  :  The 21 regional centers throughout the state  
          serve over 260,000 consumers who receive services such as  
          residential placements, supported living services, respite care,  
          transportation, day treatment programs, work support programs,  
          and various social and therapeutic activities.  Approximately  
          1,300 consumers reside at one of California's four Developmental  
          Centers-and one state-operated, specialized community  
          facility-which provide 24-hour habilitation and medical and  
          social treatment services.  

          Services provided to people with developmental disabilities are  
          determined through an individual planning process.  Under this  
          process, planning teams-which include, among others, the  
          consumer, his or her legally authorized representative, and one  
          or more regional center representatives-jointly prepare an  
          Individual Program Plan (IPP) based on the consumer's needs and  
          choices.  The Lanterman Act requires that the IPP promote  
          community integration and maximize opportunities for each  
          consumer to develop relationships, be part of community life,  
          increase control over his or her life, and acquire increasingly  
          positive roles in the community.  The IPP must give the highest  
          preference to those services and supports that allow minors to  
          live with their families and adults to live as independently as  
          possible in the community. 

           The vendorization process :  Prior to being approved to receive  
          funding from a regional center for providing services to a  
          consumer, a service provider must become vendored by the  
          regional center that oversees the catchment area in which the  
          provider is located.  This "vendorization" process includes  
          verifying that the provider is qualified to provide the planned  
          services and meets all other regulatory standards and  








                                                                  AB 2041
                                                                  Page E
          requirements.  It is important to note that vendorization makes  
          a provider eligible to provide services paid for by the regional  
          center, but does not guarantee the regional center will refer  
          consumers.  Furthermore, there is nothing precluding a vendor  
          from being vendorized by more than one regional center.  There  
          are over 45,000 vendors that provide services paid for by  
          regional centers in California.

           Autism Spectrum Disorders  :  Defined as a group of  
          neurodevelopmental disorders linked to atypical biology and  
          chemistry in the brain that generally appears within the first  
          three years of life, autism is a growing epidemic among  
          children.  While there are many "autisms," the diagnosis is  
          often characterized by delayed, impaired or otherwise atypical  
          verbal and social communication skills, sensitivity to sensory  
          stimulation, atypical behaviors and body movements, and  
          sensitivity to changes in routines.  Although symptoms and  
          severity differ among individuals with an autism diagnosis, all  
          individuals affected by the disorder have impaired communication  
          skills, difficulties initiating and sustaining social  
          interactions and restricted, repetitive patterns of behavior  
          and/or interests.  Autism spectrum disorder (ASD), is one of the  
          commonly-used terms to describe the various "autisms" and other  
          pervasive developmental disorders (PDD), and it more  
          appropriately captures the array of symptoms and varying levels  
          in the severity of symptoms experienced by individuals with a  
          diagnosis within ASD.
           
           Information released in March 2014 by the Centers for Disease  
          Control (CDC) Autism and Developmental Disabilities Monitoring  
          (ADDM) Network, estimates prevalence of ASD for children born in  
          2002 and surveyed in 2010 to be 14.7 per 1,000 children, which  
          translates to one in 68 children.  This is a drastic increase  
          from CDC data for children born in 2000 and surveyed in 2008,  
          which estimated the prevalence of children with ASD to be one in  
          88.  Average prevalence for children surveyed in 2006 was one in  
          110 children.  ASD continues to be five times more prevalent for  
          boys than for girls.<1>   

          March 2014 DDS data shows that 65,706 regional center consumers  
          have an autism diagnosis, which is more than double the number  
          of individuals with the same diagnosis served by regional  
          centers in 2006.  An additional 4,562 regional center consumers  
          are on the autism spectrum with a diagnosis of pervasive  
          ---------------------------
          <1> http://www.cdc.gov/ncbddd/autism/data.html  








                                                                 AB 2041
                                                                  Page F
          developmental disorder (PDD).  Among the individuals with  
          ASD/PDD served by the regional centers, 12,481 are female and  
          57,787 are male, and nearly 40% of the population with an autism  
          or PDD diagnosis is 0 to 9 years old.<2>
           
          Early Intervention Services  :  Research shows that a child's  
          development can be greatly impacted by early intervention  
          treatment services, especially when provided during a child's  
          first three years.  During that time, a child is developing  
          motor skills and language, and begins to socialize with others.   
          Early intervention services for babies and toddlers that have  
          been diagnosed with, or seem to be at risk for, a developmental  
          delay or disability often include physical, cognitive,  
          communication, social/emotional and self-help skill building.   
          While there is no proven cure for ASD, early intervention can  
          dramatically change the trajectory of a child's life over time,  
          including his or her ability to learn new skills throughout  
          childhood and an increased ability to integrate into, and have a  
          positive relationship with, his or her community.  
           
          Need for this bill  :  As a result of SB 946 (Steinberg) Chapter  
          650, statutes of 2011, behavioral health treatment for persons  
          with ASD/PDD is supposed to be covered under health care service  
          plan contracts and health insurance policies as of July 1, 2012.  
           Although the definition for "behavioral health treatment"  
          provided for in statute for purposes of the coverage mandate  
          includes certain evidence-based, behavior intervention programs  
          that are not categorized as applied behavior analysis (ABA), the  
          author and supporters of this bill state that not all health  
          plans and insurance companies are strictly adhering to the  
          mandate for some of the frontline service providers because the  
          definition for those professionals in state regulations  
          specifies the need for education and experience in ABA.  

          In support, the author states, "Children with Autism are unique  
          both in the way they manifest their condition and their response  
          to treatment.  It is imperative that they receive behavioral  
          health treatment tailored to their individual needs in order to  
          develop relationship and other social skills and to manage  
          negative and potentially self-injurious behaviors.  This bill  
          allows health care practitioners to make treatment decisions on  
          behalf of their patients instead of prejudging children's needs  
          with a "one size fits all" form of therapy without adding to  
          ---------------------------
          <2>  
          http://www.dds.ca.gov/FactsStats/docs/QR/March2014_Quarterly.pdf








                                                                  AB 2041
                                                                  Page G
          State costs or reducing the education or professional experience  
          requirements for frontline personnel administering behavioral  
          health therapy to California's children."

          In opposition to the measure, the Association of Regional Center  
          Agencies (ARCA) states, "[This bill] seeks to diminish  
          requirements for regional center vendors that provide behavior  
          management services and to no longer require that they be  
          trained specifically in applied behavior analysis (ABA).   
          Instead, training in other behavioral health topics could be  
          substituted. While the bill provides no definition of behavioral  
          health, it is a term commonly used that includes practices  
          ranging from substance abuse treatment to counseling and beyond.  
          Coursework in these areas is not a suitable substitute for  
          training in evidence-based ABA.  This change would also have  
          unintended consequences because according to regulations (17 CCR  
          56040 and 56724) professionals that provide important  
          consultation services to vendors are also held to the existing  
          standards. For instance, a Behavior Management Consultant may  
          work with a residential facility to design and monitor a  
          behavior intervention plan for an individual living in the  
          facility. That consultation may be the difference between the  
          success and failure of that residential placement. Without  
          meeting appropriate ABA training requirements, behavior plans  
          are far less likely to be successful, and the stability of  
          individuals is jeopardized."
           
          PROPOSED AMENDMENTS  :  In order to ensure clarity in the intent  
          of the bill, committee staff recommends a number of substantive  
          and technical amendments be made.

          1)The author indicates a desire to bring the definitions for two  
            types of behavioral health professionals into conformity with  
            the statutory definition of behavioral health treatment.   
            However, the current bill language does not provide a  
            definition for behavioral health treatment.  In order for the  
            language to achieve the author's goals, staff recommends the  
            following amendment:

           Amendment #1
           On page 10, line 23, before (a) insert:

          (a)   For purposes of this section, "behavioral health  
          treatment" shall have the same meaning as provided in Article  
          5.6 (commencing with Section 1374.60) of Chapter 2.2 of Division  








                                                                  AB 2041
                                                                  Page H
          2 of the Health and Safety Code and Article 2.5 (commencing with  
          Section 10140) of Chapter 1 of Part 2 of Division 2 of the  
          Insurance Code.
          
          1)The new definitions for Behavior Management Assistants and  
            Behavior Management Consultants will clearly include  
            professionals with education and training in ABA or other  
            evidence-based programs provided for under the behavioral  
            health treatment definition.  However, a simple  
            cross-reference to the statutory definition for behavioral  
            health treatment provided for in the Health and Safety Code  
            and the Insurance Code could open up the provision of ABA and  
            other evidence-based treatments to professionals with training  
            and education in ABA or other evidence-based treatments.  In  
            order to ensure both types of professionals are qualified to  
            provide the services for which they are classified as a vendor  
            by a regional center, staff recommends the following  
            amendments:

           Amendment #2
           On page 11, after line 12, insert:

          (3) For purposes of this section, a regional center shall only  
          classify as a vendor a Behavior Management Assistant who designs  
          or implements behavioral health treatments that are consistent  
          with the vendor's experience and education.
          
           Amendment #3
           On page 11, after line 37, insert:

          (5) For purposes of this section, a regional center shall only  
          classify as a vendor a Behavior Management Consultant who  
          designs or implements behavioral health treatments that are  
          consistent with the vendor's experience and education.
          
          2)Staff recommends the following technical amendments to ensure  
            consistency with the cross-referenced sections of the Business  
            and Professions Code, as well as consistency in terminology:

           Amendment #4
           On page 11, line 2, after "health" insert:

          treatment

           Amendment #5








                                                                 AB 2041
                                                                  Page I
           On page 11, line 7, strikethrough the second "registered" and  
          insert:

          licensed
          
           Amendment #6
           On page 11, line 10, strikethrough "licensed"

           Amendment #7
           On page 11, line 37, after "health" insert:

          treatment
          
           DOUBLE REFERRAL  .  This bill has been double-referred.  Should  
          this bill pass out of this committee, it will be referred to the  
          Assembly Health Committee.

           REGISTERED SUPPORT / OPPOSITION :   

           Support 
           
          DIR/Floortime Coalition of California - sponsor
          Performing Arts Studio
          Professional Child Development Associates
          200 Individuals

           Opposition 
           
          The Association of Regional Center Agencies (ARCA)
           
          Analysis Prepared by  :    Myesha Jackson / HUM. S. / (916)  
          319-2089