BILL ANALYSIS                                                                                                                                                                                                    �



                                                                  SCR 104
                                                                  Page  1

          Date of Hearing:   June 26, 2014

                             ASSEMBLY COMMITTEE ON RULES
                              Richard S. Gordon, Chair
                      SCR 104 (Huff) - As Amended:  June 9, 2014

           SENATE VOTE :   32-0
           
          SUBJECT  :   Mitochondrial Disease Awareness Week.

           SUMMARY  :   Declares the third week in September 2014, and the  
          third week of September in each subsequent year, as  
          Mitochondrial Disease Awareness Week.  Specifically,  this  
          resolution    makes the following legislative findings:

          1)Mitochondrial disease is not well known although every 30  
            minutes a child is born who will develop this disease by age  
            10; and there is no known cure.

          2)Mitochondrial disease occurs when mitochondria inside of  
            cells, responsible for creating more than 90 percent of the  
            energy needed by the body to sustain life and support growth,  
            fail to carry out their primary functions; and so less and  
            less energy is generated by the cell.

          3)Diseases of the mitochondria primarily affect children; and,  
            appear to cause the most damage to cells of the brain, heart,  
            liver, skeletal muscles, kidneys, and the endocrine and  
            respiratory systems.

          4)Common symptoms include muscle weakness and pain,  
            gastrointestinal disorders, poor growth, cardiac disease,  
            liver disease, diabetes, respiratory problems, seizures,  
            visual and hearing problems, and susceptibility to infection.

          5)Mitochondrial disease is progressive, likely terminal, and  
            requires a high level of care and extremely expensive medical  
            treatment and because there are only a few hospitals in the  
            world that offer treatment, families are forced to travel  
            regularly or even relocate to receive treatment.

           FISCAL EFFECT  :   None

           REGISTERED SUPPORT / OPPOSITION  :









                                                                  SCR 104
                                                                  Page  2

           Support 
           
          None on file
           
            Opposition 
           
          None on file

           Analysis Prepared by  :    Nicole Willis / RLS. / (916) 319-2800