BILL ANALYSIS                                                                                                                                                                                                    �



                                                                            



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                                 UNFINISHED BUSINESS


          Bill No:  SCR 104
          Author:   Huff (R), et al.
          Amended:  8/14/14
          Vote:     21
          _________________________________________________________________ 
          _

           SENATE FLOOR  :  32-0, 5/23/14
          AYES:  Anderson, Beall, Block, Cannella, Corbett, Correa, De  
            Le�n, DeSaulnier, Gaines, Galgiani, Hancock, Hernandez, Hill,  
            Huff, Jackson, Knight, Lara, Leno, Lieu, Liu, Mitchell,  
            Monning, Morrell, Nielsen, Padilla, Pavley, Roth, Steinberg,  
            Torres, Vidak, Walters, Wolk
          NO VOTE RECORDED:  Berryhill, Calderon, Evans, Fuller, Hueso,  
            Wright, Wyland, Yee

           ASSEMBLY FLOOR  :  Read and adopted, 8/14/14


           SUBJECT  :    Mitochondrial Disease Awareness Week

           SOURCE  :     Author


           DIGEST  :    This resolution declares the third week of September  
          2014, and the third week of September in each subsequent year,  
          as Mitochondrial Disease Awareness Week.

           Assembly Amendments  make a technical change and add coauthors.

           ANALYSIS  :    This resolution makes the following legislative  
          findings:

                                                                CONTINUED





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          1.Few people know of mitochondrial disease, yet every 30 minutes  
            a child is born who will develop this disease, which primarily  
            affects children, by 10 years of age.  

          2.There is no cure for mitochondrial disease and it is often  
            misdiagnosed.  

          3.Mitochondrial disease occurs when mitochondria inside of  
            cells, responsible for creating more than 90% of the energy  
            needed by the body to sustain life and support growth, fail to  
            carry out their primary functions.

          4.When mitochondria fail, less and less energy is generated  
            within the cell.  If this process is repeated throughout the  
            body, whole systems begin to fail, and the life of the person  
            in whom this is happening is severely compromised. 

          5.Common symptoms include muscle weakness and pain,  
            gastrointestinal disorders, poor growth, cardiac disease,  
            liver disease, diabetes, respiratory problems, seizures,  
            visual and hearing problems, and susceptibility to infection. 

          6.Mitochondrial disease is progressive, likely terminal, and  
            requires a high level of care and extremely expensive medical  
            treatment that often exceeds covered insurance benefits,  
            creating great financial burdens on affected families.  

          This resolution declares the third week of September 2014, and  
          the third week of September in each subsequent year, as  
          Mitochondrial Disease Awareness Week. 

           FISCAL EFFECT  :    Fiscal Com.:  No

           SUPPORT  :   (Verified  8/18/14)

          Help Mito Kids, Inc.


          JL:nl  8/18/14   Senate Floor Analyses 

                           SUPPORT/OPPOSITION:  SEE ABOVE

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