BILL ANALYSIS                                                                                                                                                                                                    �






                                  SENATE HUMAN
                               SERVICES COMMITTEE
                            Senator Carol Liu, Chair


          BILL NO:       SB 1445                                      
          S
          AUTHOR:        Evans                                        
          B
          VERSION:       March 25, 2014
          HEARING DATE:  April 8, 2014                                
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          FISCAL:        Yes                                          
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          CONSULTANT:    Mareva Brown                                 
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                                     SUBJECT

               Developmental services: regional centers: individual  
                           program plans: telehealth

                                     SUMMARY  

          This bill includes telehealth services and supports among  
          the services and supports authorized to be included as part  
          of an individual program plan (IPP).


                                     ABSTRACT  

           Existing Law: 


              1)   Establishes the Lanterman Developmental  
               Disabilities Services Act, which declares California's  
               responsibility for providing an array of services and  
               supports to meet the needs of each person with  
               developmental disabilities in the least restrictive  
               environment, regardless of age or degree of  
               disability, and to support their integration into the  
               mainstream life of the community. (WIC 4500 et seq.)
                                                         Continued---



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             2)   Establishes a system of nonprofit Regional Centers  
               (RCs) to provide fixed points of contact in the  
               community for all persons with developmental  
               disabilities and their families, to coordinate  
               services and supports best suited to them throughout  
               their lifetime. (WIC 4620) 


             3)   Establishes the IPP and defines that planning  
               process as the vehicle to ensure that services and  
               supports are customized to meet the needs of consumers  
               who are served by regional centers. (WIC 4512) 


             4)   Defines permissible services and supports to be  
               listed in the IPP to include diagnosis, evaluation,  
               treatment, personal care, day care, domiciliary care,  
               special living arrangements, physical, occupational,  
               and speech therapy, training, education, supported and  
               sheltered employment, mental health services,  
               recreation, counseling of the individual with a  
               developmental disability and of his or her family,  
               protective and other social and sociolegal services,  
               information and referral services, follow-along  
               services, adaptive equipment and supplies, advocacy  
               assistance, including self-advocacy training,  
               facilitation and peer advocates, assessment,  
               assistance in locating a home, child care, behavior  
               training and behavior modification programs, camping,  
               community integration services, community support,  
               daily living skills training, emergency and crisis  
               intervention, facilitating circles of support,  
               habilitation, homemaker services, infant stimulation  
               programs, paid roommates, paid neighbors, respite,  
               short-term out-of-home care, social skills training,  
               specialized medical and dental care, supported living  
               arrangements, technical and financial assistance,  
               travel training, training for parents of children with  
               developmental disabilities, training for parents with  
               developmental disabilities, vouchers, and  
               transportation services necessary to ensure delivery  
               of services to persons with developmental  
               disabilities.            (WIC 4512 (b))




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             5)   Creates the Telehealth Advancement Act of 2011 and  
               defines "Telehealth" as the mode of delivering health  
               care services and public health via information and  
               communication technologies to facilitate the  
               diagnosis, consultation, treatment, education, care  
               management, and self-management of a patient's health  
               care while the patient is at the originating site and  
               the health care provider is at a distant site. (BPC  
               2290.5) 


           This bill:


              1)   Adds telehealth services and support, as defined in  
               BPC 2290.5, to the lengthy list of permissible  
               services and supports listed in WIC 4512 (b) (see #4  
               above).


                                  FISCAL IMPACT  

          This bill has not been analyzed by a fiscal committee. 

                            BACKGROUND AND DISCUSSION  


           Purpose of the bill

           The author states that despite the implication in law that  
          permits regional centers to integrate telehealth into their  
          service models for individuals with developmental  
          disabilities, many regional centers have been reluctant to  
          use the treatment model. SB 1445 is intended to clarify  
          that existing services and supports may be provided through  
          telehealth by regional centers under the provisions of the  
          Lanterman Act. 
           
          Regional Centers

           In California, 21 nonprofit regional centers are part of a  
          system of care that delivers services and supports to  
          individuals with developmental disabilities. The regional  




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          centers are overseen by the California Department of  
          Developmental Services (DDS). With a proposed budget of  
          $5.2 billion for community-based services in 2014-2015, DDS  
          is responsible for coordinating care and providing services  
          for more than 265,000 people who receive services and  
          supports to live in their communities, as well as 1,300  
          people who reside in developmental centers.



          A developmental disability is defined in statute as a  
          substantial disability that originates before the age of 18  
          and continues, or can be expected to continue,  
          indefinitely, such as intellectual disabilities, cerebral  
          palsy, epilepsy, and autism. Disabling conditions found to  
          be closely related to an intellectual disability or that  
          require treatment similar to that required for individuals  
          with an intellectual disability also qualify.
           
          Telehealth

           The Telehealth Advancement Act of 2011 (AB 415 (Logue)  
          Chapter 547, Statutes of 2011) defines "Telehealth" as the  
          mode of delivering health care services and public health  
          via information and communication technologies to  
          facilitate the diagnosis, consultation, treatment,  
          education, care management, and self-management of a  
          patient's health care while the patient is at the  
          originating site and the health care provider is at a  
          distant site. The bill's stated intent was to provide  
          better access to primary care and specialty providers to  
          patients in medically underserved rural and urban areas,  
          and to ensure a continuum of care in those areas.  
          Telehealth was defined as s tool to create parity in those  
          areas and to create new models of care as part of a  
          multi-faceted approach to health care.


          A 2008 report, "Meeting the Health Care Needs of  
          California's Children: the Role of Telemedicine," by the  
          Children's Partnership, stated that "Quality health care no  
          longer requires a health care provider and patient to be in  
          the same room at the same time. With the advancement of  
          information and communications technology, children and  
          adults can receive high-quality health care from a distance  




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          through telemedicine. In fact, telemedicine is rapidly  
          becoming a viable solution to meeting the health care needs  
          of patients in rural and other underserved areas."


          California was one of the first states to adopt legislation  
          to define and support the role of telemedicine in health  
          care delivery. In 1996, California adopted the Telemedicine  
          Development Act of 1996, identifying telemedicine as a  
          legitimate means of providing health care. Current statute  
          prohibits a health care service plan from requiring that  
          in-person contact occur between a health care provider and  
          a patient before payment is made for a covered service  
          appropriately provided through telehealth. 


           Related legislation
           
          AB 1231 (V. Manuel Perez, 2013) would have required DDS to  
          inform all regional centers that any appropriate health  
          care service and dentistry may be provided through the use  
          of telehealth, as defined, to consumers of regional center  
          services. The bill was vetoed by the governor who stated  
          the bill's goals were permissible under current law.

          SB 764 (Steinberg, 2012) would have required each regional  
          center's IPP team to consider the use of telehealth,  
          whenever applicable, to improve access to intervention and  
          therapeutic services for consumers and family members. This  
          bill was vetoed by the governor who stated the bill's goals  
          could be accomplished under current law.

          AB 415 (Logue), Chapter 547, Statutes of 2011, established  
          the Telehealth Advancement Act of 2011 and stated  
          legislative intent to use telehealth to expand consumers'  
          access to convenient and quality care.


           Comments  : 

          Twice in the last two years, Governor Brown has vetoed  
          similar bills that sought to require the state to inform  
          regional centers about their ability to use telehealth  
          services, when appropriate. In both cases, the governor  
          noted that telehealth services are currently permissible  




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          under California law. This bill seeks a different approach  
          by simply adding telehealth to the list of authorized  
          regional center services within the Lanterman Act. In the  
          author's proposed version of the bill, telehealth is listed  
          prior to other fundamental services and supports in the  
          list of permissible items. 

          Staff recommends amending the bill to move telehealth to a  
          place on the list commensurate with similar services, as  
          follows:

          WIC 4512 (b)
               ? Services and supports listed in the individual  
               program plan may include, but are not limited to,  
                telehealth services and support, as defined in Section  
               2290.5 of the Business and Professions Code,    
               diagnosis, evaluation, treatment, personal care, day  
               care, domiciliary care, special living arrangements,  
               physical, occupational, and speech therapy, training,  
               education, supported and sheltered employment, mental  
               health services, recreation, counseling of the  
               individual with a developmental disability and of his  
               or her family, protective and other social and  
               sociolegal services, information and referral  
               services, follow-along services, adaptive equipment  
               and supplies, advocacy assistance, including  
               self-advocacy training, facilitation and peer  
               advocates, assessment, assistance in locating a home,  
               child care, behavior training and behavior  
               modification programs, camping, community integration  
               services, community support, daily living skills  
               training, emergency and crisis intervention,  
               facilitating circles of support, habilitation,  
               homemaker services, infant stimulation programs, paid  
               roommates, paid neighbors, respite, short-term  
               out-of-home care, social skills training, specialized  
               medical and dental care,  including telehealth services  
               and support, as defined in Section 2290.5 of the  
               Business and Professions Code,    supported living  
               arrangements, technical and financial assistance,  
               travel training, training for parents of children with  
               developmental disabilities, training for parents with  
               developmental disabilities, vouchers, and  
               transportation services necessary to ensure delivery  
               of services to persons with developmental  




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               disabilities. Nothing in this subdivision is intended  
               to expand or authorize a new or different service or  
               support for any consumer unless that service or  
               support is contained in his or her individual program  
               plan.

                                    POSITIONS  

          Support:       Center for Autism and Related Disorders
                         Special Needs Network

          Oppose:   None received.

                                   -- END --